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Nuria's avatar

Interesting, thanks for the info! Hadn't heard of CHOP POTS before. Did you just do the strengthening exercises or did you also modify the cardio protocol to make it work for you? I can already do two bridges a day, woot woot!

My physical work has concentrated so far on getting back the normal mobility at home. I started with 3 walks a day in the apartment (2 to 10 minutes, depending on the day), then once my POTS got better and I could get up as often as I wanted, I started doing more normal movement. Now I'm able to care for myself and not ask anyone to bring me anything, but I haven't been able to do that *and* the walks, so my endurance is way down. I have the impression that the "normal" movements like making tea, getting up to get something, etc., require actually more energy than just walking.

I felt now like I could start strengthening exercises and tried half an RRR class from Suzy Bolt, but crashed after that (little crash, but still). So now I am taking the exercises of that class and starting with just 2 per day, one in the morning and one in the afternoon.

I find the hardest thing to be the consistency, because if I crash or have lower energy for other reasons, I have a hard time building up the progress I had made again. I've tried several times to start walking the stairs again and always had to stop for some reason (with a maximal gain of 5 steps), so now it seems like a much bigger task than it used to.

I am trying now the 10 marbles technique by Raelan Agle and that works nicely. I hope it will help me with consistency, so that even if I have lower energy, I do 10 kinder movements, but my brain still registers that we want to move regularly. I might try to integrate the CHOP POTS exercises in there :)

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Nuria's avatar

Oh, and yoga. Very gentle yoga is great. I find it actually gives me more energy!

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